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Mission Statement

To help relieve the suffering and distress

• of children born with complex heart conditions, and
• their families, including those families that have lost their children to Congenital Heart Disorders.

by providing non-medical support, information and other assistance directly to families.

To raise community awareness of complex Congenital Heart Disorders.

• Our goal is to create a broader understanding of the challenges faced by families and their children who are affected by these conditions.

To support the Medical Community by:

• providing feedback and information about our activities to hospitals, doctors and other medical professionals, and
• raising funds for the purchase of medical equipment and for research programs.

To work co-operatively with other organisations that share our goals.

To achieve our aims, we raise funds:

• to assist families living away from home for extended periods while their children are hospitalised,
• for the purchase of goods/services to increase the comfort of hospitalised children and their families,
• for events where the children and their families can enjoy social activities,
• to disseminate information about Congenital Heart Disorders and our activities.
• to support Paediatric Cardiac Research Programs in Australia that lead to higher survival rates and a better quality of life for children born with heart conditions, and
• for the purchase medical equipment to improve the management of these disorders.

Hearts of Hope (HoH) Australia is a non profit organisation that is incorporated under the Corporations Act 2001.

The organisation was first setup in 2002 by a group of families with HLHS children. For two years we operated as   the Australian HLHS Information Network.   It was decided to formalise our  group so we could provide better support for families.

HoH incorporated in July 2004 and is self-funded from donations, members subscriptions and  fundraising. Our programs are  run by volunteers and co-ordinated by the HoH Executive Committee.

We offer  non-medical support to all families with with a child born with a heart condition  that cannot be cured through medical intervention. This includes, but is not limited to, disorders such as HLHS and other single ventricle anomalies.