Last Update:
23 Mar 2006 04:30

Hearts of Hope Australia

~ Support for Families Living with Complex Congenital Heart Conditions ~

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HoH e-News Issue 2005/01: 24 April 2005  
Welcome to the first issue of the for Hearts of Hope Australia e-newsletter. The purpose of this 'publication' is to keep everyone up to date about what is happening with the group.

You may have noticed that this is being sent to a new mail list I recently setup. All current members have been subscribed to this list but if you are not interested in receiving newsletters please follow the unsubscribe instructions below. Also, this new list is an announcement list and as such if you reply to the newsletter your message will be directed to me and not to the list. Anyway, on to the news... 

New members
I would like to welcome all the new members to our group and also thank you for your support for Hearts of Hope Australia.
  • Reshma & Sanjay Bhojwani - Indonesia (currently at RCH Melbourne)
  • Nev & Andrea Hyde - Queensland, Australia (currently at RCH Melbourne
  • Amy & Brad Lloyd - Queensland, Australia
  • Natalie Colvin - NSW Australia
  • Selina Jimenez - New Jersey, USA
  • Shannon Elfering - Arizona, USA
Please login to to see the complete membership list. I should also mention that not all members are subscribed to GroupMail. If you would like to contact those members, you can do that via the 'internal messaging" service in the members area.

Hearts of Hope Australia Website
I have spent the last couple of months updating the website as some features were not working and many of the links were 'broken'. All pages have now been updated and references to AHIN were replaced with Hearts of Hope Australia. There are some additional features/services to be implemented, (when I recover from this lot of updates!) including:
  • A 'LiveHelp' utility which will allow visitors to the website to page me (or anyone else who is given access to the system) to get online 'real-time' help, and 
  • A web shop to help us raise some funds. If anyone has ideas for the HoH Shop, please let me know.

Nearly forgot... a basic chat program has been added to the the messaging section. You will need to login* to access this and the first time you enter the chat-room you will be asked to install some software. If people find this useful I will look into upgrading this service. It may also be an idea to have a set time for chats but will leave this open for discussion. Please post your comments to GroupMail.

*TIP: When you login, a list of members currently online is displayed in the left column. If you would like to chat with them use the messaging service to invite them to the chat-room.

Income Tax Exemption and DGR status

I am pleased to announce that Hearts of Hope Australia  has been endorsed as an Income Tax Exempt Charity by the Australian Taxation Office.

Unfortunately, our application for deductible gift recipient (DGR) status has been refused. This means donations made to HoH are not tax deductible, at this stage.

Our application was submitted on the basis that HoH Australia is a health promotion charity. The Tax Office assesses these applications by looking at what the aims of the organisation are and what activities are carried out to meet its objectives. I received a rather lengthy letter from the ATO explaining its decision and in my opinion, they have taken a very narrow view of what we do. Their conclusion is that:

"HoH's activity does not demonstrate that its brochures on Congenital Heart Defects help prevent the disease from occurring or control the disease through education to parents and medical professionals" 

While we can't prevent CHDs, I do believe we play a role in the control of heart conditions such as HLHS. Providing information to parents so they can advocate for their children and 'educating' doctors that may never have come across HLHS, does lead to the control of these 'diseases'.

We have until the first week in June to ask for a review of this decision. I am sure if we provide more information to the ATO we will be able to successfully argue the case that Hearts of Hope Australia is a Health Promotion Charity. I could really use some help with this, if anyone would like to provide a submission to support our case, please contact me.



HoH e-News

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24 Apr 2005

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Hearts of Hope Australia Limited (ABN 70 110 635 517)
39 Crystal Downs Drive  Blackmans Bay  TAS  7052