Last Update:
23 Mar 2006 22:19

Hearts of Hope Australia

~ Support for Families Living with Complex Congenital Heart Conditions ~

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HoH e-News Issue 2005/01: 24 April 2005  
 
Hello Everyone,
Time for another update as a few things have happened since the last e-newsletter. Please feel free to email your comments to me by using the link at the bottom of this page or to the group at: GroupMail@hearts-of-hope.org.
In this Issue...
  • New Members
  • HoH Website
  • Fundraising
  • HoH Newsletter
  • Membership Fees
This issue of HoH e-news can also be viewed online.
New members
I would like to welcome all the new members to our group and thank you for supporting Hearts of Hope Australia.
  • Annie Harrison: USA (Director, Little Hearts of Texas)
  • Kylie Marie McKay:  Victoria, Australia
  • Simone and Stewart Downs: Victoria, Australia
NOTE: Not all members are subscribed to GroupMail. You can contact anyone not on our email list, by using the HoH  website 'internal messaging' service or by searching members register which includes contact details for everyone that has joined. Login here to access these features of the HoH website.
 
Hearts of Hope Australia Website
An automated process has been set up to let everyone know when new members join. These notifications will be sent directly to the HoH GroupMail list and will include the Member's Name, their "About Us' details and the Email address they signed up with. Please contact new members and welcome them to the group.  
TIP: View the subscribers list Online or have it emailed to you  by sending a request to GroupMail-request@hearts-of-hope.org with "who PASS" in the subject line where PASS is your list password.
 
Fundraising

Firstly, I would like to thank Leanne Amarant and the Student Representative Council of the Stawell Secondary College for their fundraising efforts. A 'casual clothes day' held on Friday, June 3 raised a over $200 for Hearts of Hope Australia.

At this stage, we can only hold fundraising events in Tasmania, Victoria and NT. We are working towards meeting the legal requirements of all States and Territories but this will take some time as each state has different laws for charitable collections.

If you reside in one of the 'approved' states and would like to organise a fundraiser, please contact me as all activities to collect funds from the public must be approved by the Directors of HoH Australia before the event is arranged.

 
Hearts of Hope Newsletter

Planning of our first print newsletter is well underway. Without giving too much away the first issue will include:

  • A brief history of HoH including Directors' biographies
  • Personal stories written by a number of members of the group
  • Book and Internet Resources
  • An 'interview' with Dr Brizard
  • Birthday List and more!

I would really appreciate everybody's input into this project. Publication is planned for mid to late July so there is still plenty of time to send me your suggestions. Please use the following links to email your ideas and contributions:

Books, Internet Sites & other Resources to assist Families
Questions for Dr Brizard
A name for the HoH Newsletter
Family Photos

There is plenty of space available for photos. Part of the purpose of the newsletter is to give hope to families that have had a child diagnosed with a heart condition. Photos of families and children are a great way to do this. I would like to encourage everyone to submit a recent photo for inclusion in the newsletter. Please send me your favourite picture (with caption) either by email or post. Any original photos will be returned to you after I have scanned them.

 
Membership Fees

The issue of membership fees was discussed at the 1st meeting of the Executive Committee which resolved "that a $20 annual membership fee be introduced". Now that Hearts of Hope Australia has started to implement its programmes, it is appropriate that we introduce an annual subscription fee to help defray the running costs of the organisation. The Committee agreed that membership would "be free for parents of children with complex heart conditions until the child is 6 months of age."

As the funds we receive can generally only be used for the benefit of Australian sufferers of complex congenital heart conditions, subscription fees are optional for families whose child has passed away and for those members who reside outside of Australia. We value the contribution of all our members and will always provide what ever assistance we can to families that wish to be a part of our support group. However, we feel it would be unfair to compel those who cannot directly benefit from our funded programmes to subscribe to our services.

Subscriptions will be offered from July 1 2005. In addition, to having full access to HoH services, subscribing members also have a say in how the organisation is run. The Executive Committee is bound by the Hearts of Hope Australia constitution to "be responsive to the views of Members" and does this by discussing all issues and suggestions raised by our 'financial members'.

Current members can subscribe by making a payment of $20 by direct deposit* to our ANZ bank account (BSB Number: 016 745, Account Number: 4984 29962) or by forwarding a cheque or money order, payable to Hearts of Hope Australia Limited to:

HoH Membership Secretary
58 Harvey Street
Burswood  6100  WA

*Please include your name as a reference if you are paying by direct deposit.

Some members have also asked if their extended family and friends can join HoH. The short answer is yes; we are more than happy to offer membership to anyone who supports our aims. I have included a sample invitation below. Please edit this to suit (leaving the link information intact) and forward it to anyone you personally know that may be interested in supporting HoH through a subscription.
 
  Dear   ,

I am a member of  a support group for children born with complex heart conditions. Hearts of Hope Australia is a non-profit organisation that was setup to help relieve the suffering and distress of these children by providing non-medical support, information and other assistance directly to their families.

The reason I am writing is to ask if you would be interested in supporting us by subscribing to the HoH Newsletter which is published quarterly. Subscription costs  $20 per annum and also includes access to various services offered via the HoH Website. More details about Hearts of Hope Australia's mission, programmes and services are  available by visiting the website or by requesting an information pack from:

The Secretary
Hearts of Hope Australia
30 Buchanan Elbow
Mandurah  WA   6210
Ph: (08) 9586-2708

If you would like to subscribe, please complete and return the application form that comes with the information pack. Alternatively you can subscribe online.

Thank you

your name


Hearts of Hope Australia Limited
ABN 70 110 635 517
PO Box 363
Huonville TAS  7109.

HoH Australia Website:   www.hearts-of-hope.org
Subscription Application:
www.hearts-of-hope.org/members/join.annual.htm 

 
If you have any questions concerning membership subscription please contact me using the email link below or by calling me on (03) 6229-8169.
Need an email address? HoH provides a yourname@hearts-of-hope.org email address to subscribing members. This is not web-mail but your own inbox on the HoH Website server that you access with Outlook Express or whatever email program you use. Go here for more information

Unsubscribe
If you no longer wish to receive this newsletter please send a blank email to: Announce-leave@hearts-of-hope.org. Note: The email address you send this message from must be the same as your HoH Newsletter subscription address.


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13 May 2006
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24 Apr 2005

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Hearts of Hope Australia Limited (ABN 70 110 635 517)
39 Crystal Downs Drive  Blackmans Bay  TAS  7052