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Family Link

There are many stories of children born with HLHS published on the internet. FamilyLink is a collection of these web pages, most of which show a personal view of Hypoplastic Left Heart Syndrome. While it is vital to have an understanding of the medical side of this condition, it can also be helpful to see how others have coped with all the ups and downs of having a child born with this life-threatening heart condition.

It is reassuring to see more and more children are surviving due to the advances in medical science and the dedication of the health professionals that care for them. At the same time, HLHS is still a leading cause of death of newborns and some of these stories have sad endings. It is important to include these as well so that parents who suddenly find themselves confronted by HLHS find a balanced view on what the outcomes may be for their own child.

We hope these stories can be an inspiration as they really are a testament to the courage of families that have to face the reality of living with a child with a complex heart disorder.
 

FAMILY LINK

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