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Perspective

Learning that your baby has a serious medical condition is devastating for parents. We all want the best for our children and hope they will have a bright and happy future. For children with HLHS the future is without a doubt less certain.

As babies, these children face complex and high-risk surgeries that most adults never have to go through. The anguish and stress at this time can be overwhelming for parents. Despite this, children born with HLHS bring hope and a new perspective on life to their families. Every milestone these children reach: the first smile, the first tentative steps or the first words, are especially precious for the families who know how hard their children have had to fight for their survival.

Coming to terms with HLHS and learning how to deal with the changes it brings to our lives is a very personal journey. Family, friends and the people who have 'been there' can all help with the tough times ahead.

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    Cost of Children

    The government recently calculated the cost of raising a child from birth to 18 and came up with $160,140 for a middle income family. Talk about sticker shock! That doesn’t even touch college tuition. For those with kids, that figure leads to wild fantasies about all the money we could have banked if not for...
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    Joseph’s Heart

    Joseph, our 11th child was born on October 4, 2001 with HLHS. Our family spent over 4 months in Melbourne while he underwent surgery at the Royal Children’s Hospital. Although his recovery was not totally free of complications, over all he has done really well. Since being home, he has come along in leaps and...
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    Max’s Place

    In memory of our beautiful boy Max Dennis Henry Round (HLHS). In June 2002 our sons Henry and Max were born, our two beautiful boys. Max was diagnosed with an extremely serious congenital heart defect called Hypo Plastic Left Heart Syndrome. The boys were born in Adelaide, however the only place equipped to care for...
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    Meaning of Health

    Believe it or not, the “meaning of health” is a tricky question. I believe that the essence of health is balance and a kind of inner resilience that allows you to move through the world unharmed by all the things out there that have the potential to injure you. Part of being healthy means that...
  • in Perspective

    The Mountain

    Once upon a time, there was a man and a lady who faced a horrid burden. Their lives had become strained and every day they shared a constant uphill battle of climbing up a huge mountain. The mountain was very overwhelming, it was far too high, and the journey was far too long. Even if...

This collection of articles, stories, poems and photos will give some insight into what it means to care for a child with a life threatening illness.

This collection of articles, stories, poems and photos will give some insight into what it means to care for a child with a life threatening illness. We invite all our website visitors to contribute to this section by submitting articles that help ‘put things into perspective’.

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