Learning that your baby has a serious medical condition is devastating for parents. We all want the best for our children and hope they will have a bright and happy future. For children with HLHS the future is without a doubt less certain.

As babies, these children face complex and high-risk surgeries that most adults never have to go through. The anguish and stress at this time can be overwhelming for parents. Despite this, children born with HLHS bring hope and a new perspective on life to their families. Every milestone these children reach: the first smile, the first tentative steps or the first words, are especially precious for the families who know how hard their children have had to fight for their survival.

Coming to terms with HLHS and learning how to deal with the changes it brings to our lives is a very personal journey. Family, friends and the people who have 'been there' can all help with the tough times ahead.

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This collection of articles, stories, poems and photos will give some insight into what it means to care for a child with a life threatening illness.

This collection of articles, stories, poems and photos will give some insight into what it means to care for a child with a life threatening illness. We invite all our website visitors to contribute to this section by submitting articles that help ‘put things into perspective’.