Relocating to get treatment for your baby is a very stressful undertaking. Coming to terms with a complex Congenital Heart Disorder and being there for your child consumes most of your time and energy. Organising day to day things such as accommodation, shopping and transport can be overwhelming.
We hope these pointers from families that have been there will be helpful. There is also useful information about 'life after hospital' on this page. Again, these tips have been submitted by parents of children with Hypoplastic Left Heart Syndrome.